Grieving mum feels ‘cheated’ she couldn’t give daughter, six, her own health

Yasmin Vickers-Hughes with her daughter Alaya (Image: Gofundme)

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A grieving mum said she felt "cheated" she couldn't give her daughter her own health in a heartbreaking tribute.

Yasmin Vickers-Hughes, 34, said a lack of oxygen at birth left Alaya with 70 per cent brain damage – with doctors warning she would never learn to walk or talk.

The tot was left with cerebral palsy, epilepsy, scoliosis, and severe dystonia – but Yasmin vowed to give her “the best life possible” regardless.

After Alaya's tragic death, Yasmin has vowed to spend the rest of her life helping disabled kids in memory of the daughter who inspired her to "fight like a lioness".

The mum has set up a GoFundMe page to raise money for Alaya’s headstone.

She was left with cerebral palsy, epilepsy, scoliosis, and severe dystonia
(Image: Yasmin Vickers-Hughes/Facebook)

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Paying tribute to her daughter, she said: “She had this incredible fighting spirit from the moment she was born.

“I’ll always remember the look in her eyes when the doctors took her away for cooling treatment to try and reduce her brain damage.

“She looked utterly exhausted but determined to say alive. I feel truly blessed to have been a mother to such a courageous, resilient little girl.

A gofundme page has been set up to raise money for Alaya’s headstone
(Image: Gofundme)

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“Although she’s not on this earth anymore, I’ll always be proud to be her mummy.

“She was such a charming little soul, and even as a baby had enchanting eyes and a magical smile that lit up the room."

Yasmin says that when Alaya was born, her life changed forever.

"She was such a charming little soul"
(Image: Gofundme)

She added: “I’d embarked on a journey I could never have comprehended.

“Despite being told that Alaya would never be able to walk, talk or do anything I was always a ‘can do’ mum.

“I made sure to look at I looked at the possibilities not the barriers and give her the best quality of life I could.

“Her disabilities manifested at around three months, and the severity meant that even some doctors found her case incredible challenging.

A lack of oxygen at birth left Alaya with 70 per cent brain damage
(Image: Gofundme)

Yasmin says Alaya was her 'ray of sunshine'
(Image: Yasmin Vickers-Hughes/Facebook)

“But I never gave up on her, and I’ll always be proud of that. I became a lioness and fought for everything she needed.

“When I was told she was too young to get a mobility vehicle, I contacted my local MP to try and get the age requirement lowered."

Yasmin said her daughter was treated at Alder Hey but she also scoured the internet and found a doctor in London who could help.

The mum made sure Alaya got the care she needed
(Image: Gofundme)

“He was the remarkable Professor Lumsden from the Guys and Evelina St Thomas Hospital, and he gave her a new lease of life with two drugs that weren’t available to her at Alder Hey," she said.

“They made her severe dystonia symptom reduce, which made her cruel disorder a bit more manageable.

“Alaya brought out the best in me, and made me see life from a different perspective. I feel cheated that I couldn’t give her my health.

“She gave me an inner strength I never knew I had, and inspired people from all walks of life.

Yasmin says Alaya brought out the best in her
(Image: Yasmin Vickers-Hughes/Facebook)

“She was my ray of sunshine and my little miracle, and even though she’s gone I’m going to give her a legacy by spending my life advocating for families with disabled children.

“I know first-hand how many battles you have to fight while looking after a disabled child, in addition to the intensities of a 24/7 caring role.

“Even though my relationship with her dad was off and on, Alaya adored Kev and he adored her – but I know there are lots of mums out there who don’t have any help at all.”

She was a "courageous, resilient little girl"
(Image: Yasmin Vickers-Hughes/Facebook)

A GoFundMe page to raise money for Alaya’s headstone has raised over £3,200 in less than a week.

Yasmin added: “I can’t afford one because her funeral was so expensive.

“My amazing mum and stepdad paid for the princess funeral she deserved, but there wasn’t enough left to get a permanent headstone – so there’s just a wooden one there at the moment.

“It would mean the world to me if funds could be raised so we can get a lasting memorial to her.”

* To donate to Alaya's page,  click here.

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