Gogglebox’s Steph and Dom’s heartbreak after illness leaves son ‘trapped at age 6’

Gogglebox’s Stephanie and Dominic Parker have heartbreakingly revealed how a severe form of epilepsy has left their 18-year-old son trapped in the mind of a six-year-old.

Max was just four months old when he first started having infantile spasms, but the condition was quickly controlled with steroids.

However, dad Dom says it returned ‘with a vengeance’ when he hit four, causing irreparable damage and up to 120 seizures per day.

"I know were not going to fix him, we’ll never reverse the damage," Max – who is hoping medicinal cannabis can help his son – said on today’s Good Morning Britain.

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Gogglebox's Steph and Dom's heartbreak after illness leaves son 'trapped at age 6'

(Image: ITV)

Gogglebox's Steph and Dom's heartbreak after illness leaves son 'trapped at age 6'

(Image: Channel 4)

"Quite a long time ago we came to the conclusion that hes going to be like this for rest of his life."

"He just turned 18, he’s probably trapped at age six, he’s stuck there."

Sadly, Max’s ability to communicate is limited- although his parents are all too aware when he is suffering.

"He’s a charming, beautiful, polite young man, but there’s very little conversation. He doesn’t complain, he doesn’t really talk very much, there is very little communication," Dom said.

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Gogglebox's Steph and Dom's heartbreak after illness leaves son 'trapped at age 6'

(Image: Channel 4)

Gogglebox's Steph and Dom's heartbreak after illness leaves son 'trapped at age 6'

(Image: Channel 4)

Thankfully, though, doctors have assured the couple that the actual seizures are not painful for their son.

"I’m not sure he’s even aware that he’s actually suffering. Every time he seizes he’s not feeling it or remembering it so it’s not as painful for him as it is for us to watch it," he added.

Steph and Dom are now hoping their son will find some relief after cannabis was legalised for medicinal use.

"Do I think it will save his life? Yes, maybe," Dom said.

Gogglebox's Steph and Dom's heartbreak after illness leaves son 'trapped at age 6'

(Image: Channel 4)

Max needs 24 hour care and the couple live in fear that he may suffer a severe seizure and never wake up – known as SUDEP (Sudden Unexplained Death In Epilepsy).

And they’ve now filmed a new Channel 4 show documenting the use of medical marijuana and exploring whether it could help relieve Max’s symptoms.

* Steph & Dom: Can Cannabis Save Our Son? airs tonight at 9pm on Channel 4

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